Full Day of Work and Sounds

I don’t know English well enough to find the most appropriate verbs and/or adjectives that would correctly present the sounds Robert was making today. Beside one scream in the morning all the other noises were not only toned down considerably but also hard to name or even categorize. Sometimes, they sounded like mixture of moaning and singing. Other times like laugh interrupted by confusion. They were not created to have any impact on Robert’s surrounding. They were soft, heartbreaking, and very personal.Whatever bothered Robert, he was dealing with his feeling through those song-like whining.

Robert woke up with his lips dry and white. He was holding his breath a little too long before exhaling. He was in pain. He said his stomach hurt, but that is what he learned to say when asked about pain. It might be that his chest hurt or his head. We gave him inhaler for possible asthmatic discomfort and matamucil cracker for digestive system problems. I told him that he could sleep longer and didn’t have to go horse riding. My words had the opposite effect. In a few second Robert was up. He spent a lot of time in the bathroom, so I again suggested to him to skip the horse riding lesson. But he didn’t want to.
As we drove, he chose listening to music, but was tense and a few times he produced some soft sounds. I asked Kate, his instructor, to stop the lesson as soon as the noises would interfere with the lesson. But there was no need for that. Robert followed all the directions given by Kate, although his reactions were rather delayed.
On a way home, he wanted to stop at the Supermarket. I wasn’t sure if that was a good idea, given his obvious discomfort, but agreed, nonetheless.
It would have been a very nice shopping experience if I were not so stressed. Robert helped bagging and got a sticker for helping the cashier.
After returning home, he fell asleep. He helped dad in his garden work then they went for a walk in the Moose Hill and to Subway Restaurant. Two first activities were accompanied by sounds.
We studied together in three intervals. First, Robert read Amelia Bedelia Makes a Friend and with my help (mostly turning pages) answered questions I wrote to accompany reading. The book is on a very low reading level. Its 32 pages could be read in 10 minutes. Decoding is, however, not a problem for Robert. Comprehension is. This book presented Amelia’s Bedelia problem of literal understanding of expressions in a very simple way. Robert answered two pages of questions and then he drew the appropriate pictures.
We proceeded to lesson 11 from Reasoning and Writing. A few years ago, I couldn’t really work on “If” problems (If I do that, you do this.) even though there was a picture model in the book to demonstrate to Robert what he was supposed to do. It didn’t offer sufficient help. There was a need for another person, live model. At that time, Jan was in California and Amanda was in Oregon. Now, with Jan coming to participate in that part of the lesson, it is much easier for Robert to understand the concept and respond timely and fluently.

We did most of our regular daily studies. After we finished, Robert again returned to making sounds and I returned him to piano to have him sing Are You sleeping? and to a set of Apraxia cards, to have him talk.
Robert relaxed watching on PBS the musicians performing on Ed Sullivan show. He kept running and finally seemed relaxed.
Still, before he went to bed, we approached piano three more times and sang together, “Are you sleeping? Are you sleeping?”
Obviously, not yet.

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1 Comment

  1. Jean

     /  June 2, 2014

    I hope Robert’s discomfort resolves soon, and it is interesting that he uses song-like sounds to soothe discomfort.


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