Where Do the Screams Spring From 2

June 1, 2020

Robert’s screams arrive suddenly and unpredictably most of the time. They are not easy to deal with. We know that Robert is in discomfort, but we don’t know why. Even when he tries to tell us, we don’t understand. That leaves us powerless, unable to sooth him or help him.  Nonetheless, we have to try to find the causes of his distress. Understanding Robert’s reasons for screaming would allow us to either calm Robert, or calm ourselves (when the reason is not serious) or both.

Episode 1

Robert’s dad had a virtual doctor’s visit. He was using IPAD to connect with his physician. It was scheduled early in the morning when we expected Robert to be still sleeping or spending never ending time in the bathroom. But Robert was up and not happy. He didn’t want his dad to sit at the dinner table early in the morning and looking at Robert’s IPAD. He screamed. He was agitated.  He hit his cheeks.  We tried to explain that this was a doctor’s appointment exactly like the ones Robert had before. He had three already. Robert was not convinced. After all we used cell phones to conduct his appointments not IPAD.  He kept repeating, “Computer, computer”. Then he screamed as if something terrible was happening.  We were not able to persuade him to go to a different room, watch TV,  eat his breakfast, or just be quiet.  He couldn’t leave his dad in the wrong place with the wrong device.  “Computer, computer” he kept repeating between screams letting dad know that he should work on his computer and not on Robert’s IPAD. His screams interfered with the visit. The doctor was concerned.  But luckily, she knew Robert and she knew Robert’s issues with screaming.  She said, “Hi Robert.  How are you feeling? ” Robert stopped screaming.  He came closer and looked at the IPAD to check who was talking. He recognized the doctor.  He even said very softly, “Good, good”, calmed down, and retired to his room.

Robert was upset because the  morning routine was broken.  He tried to force us to act as we always did but we couldn’t. What calmed Robert was  the presence on the screen of the doctor whom he knew well.  Her presence explained and excused the changes to the morning habits. It was also beneficial that the doctor addressed Robert directly and by doing so she somehow changed the setting of Robert’s mind.

Episode 2

Robert was agitated. He made many grumbling noises. He said something. Whenever he says something I don’t understand I try to decipher that word through the context in which it was said. Since there was a letter on the table, I assumed Robert was saying, “mail”. Recently,  making sure that we send all the letters properly became Robert’s obsession. So, I said, “We will drop the letter in the mailbox later.”  That was supposed to calm Robert, but it only irritated him even more. He kept repeating his tangled sound louder with addition of sharp screams.

“Robert, write me what you want,”  I said.

And he did.  He wrote, “May”.

Now, I knew.  He was looking for a May page from a wall calendar. “Robert, it is in a recycling bag”.  Robert looked, but couldn’t find it. “Robert, it is on the bottom.” He looked again, found it, unfolded it, took a second look, folded it back and dropped in the recycling bag again. He was fine.

Robert gets very anxious when things disappear without explanation. For him this is a sign that there is something very wrong with the world. He also gets upset when his speech is misunderstood. Luckily, he can write. Not much, one word.  But that one word makes a world of a difference. 

Episode 3

Robert screams very loudly. He produces sudden, sharp screams.  He hits his face with short, quick movements.  His face is red even in the places he is not touching. The skin around his eyes seems swollen. There is no point of asking Robert to write.  He is not looking for anything, he is not trying to fix anything to make his surrounding compatible with his OCD rules. He is probably in pain. But the pain is something for which Robert lacks words. He know the word “pain” but he cannot use it.  I don’t know why.  He cannot say what hurts.  Pain is something attacking him from inside and that makes it impossible to describe.

I think he is in pain. But I don’t know what hurts.  I am not even sure he is in pain, I only assume.  Maybe this is asthma, so I give him inhaler. Maybe this is some more serious allergic reaction to something. (But what?)) so I give him Benadryl.  Maybe he has problem with gases, so I give him Metamucil Wafers and a glass of water. Maybe he has headache, so I give him Advil.

Then I wait.

 

 

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3 Comments

  1. Maria:

    glad you filled out “Where do the screams spring from part 2” with three incidents from the last months/weeks.

    What I saw last week was … intriguing? perplexing?

    Those were three times where you were able to find the causes – with significant detective work and Robert having a hand in solving his own problem.

    I had been wondering about Robert this northern summer.

    Mail and May do sound rather alike.

    There is a big difference, using a cell phone and an iPad and a computer for the same thing [doctor’s appointments].

    With the cell phone you can carry around the doctor in your pocket; and all your friends and contacts.

    And it is good you have a spot for all the calendars. That would have been last month’s? We have several spots in several places?

    “He couldn’t leave his dad in the wrong place with the wrong device”.

    WRONG place with the WRONG DEVICE [a few emphases there].

    And a lot of people take other people’s devices away in these circumstances – or have it taken away.

    So was the doctor Jan’s doctor or Robert’s doctor?

    And when you have an explanation and an excuse – a reason – things are better. The shock of the change. Telepresence is very helpful. And so is the set shift.

    And – oh – the red and swollen eyes! Hopefully his lashes and brows and lids didn’t get too tied up or stuck anywhere. Thought of the smile creases.

    When my eyes become red and swollen it is usually something to do with sinuses and temples – the right temple up on the top.

    Never-ending time in the bathroom?

    How do you talk about pain from the inside [as an individual and as a family]? Without blame or without shame?

    It often comes in colours like blue or brown or white.

    When I was a student I looked up the Polish words for aches and pains and body parts in a Lonely Planet phrase book. And dizziness and other common illnesses.

    And the Reg Reynolds [Canadian psychologist] site you visited a few years ago – is really great.

    How does Robert do his writing where you can see it? With a pen? The IPad? the cell phone?

    Adelaide

    Reply
  2. Thank you Adelaide. You made a few valid observations. Lately, it has been more difficult for me to precisely express my thoughts or appropriately describe situations/events. I feel that I am going around the things I want to write about and thus I miss the point I wanted to make or… to find through writing. .
    Years ago I belonged to small (4 people ) writing group. We read each other texts and gave our impressions including the sections that were not entirely clear. We did the same thing you have just done. I missed that group and I appreciate your comments. I will rethink the writing. Maria

    Reply
    • Thank you, Maria, for your response.

      I cut and paste bits of writing to quote which would highlight a point.

      The intimacy of such a writing group would help a lot and you would in turn be helpful.

      To be vulnerable in writing is to be human, and as Montaigne did say, “Nothing human is foreign to me”.

      Or a lag between point and the making and finding.

      Going through the trees and the forest.

      Expression and description are tricky and wicked – especially when you want to be precise and appropriate around a thing which is not particularly precise or appropriate in its phenomena.

      And then I remembered that Robert has a sister who love him very much – albeit she is in Paris – and he would probably not want another one – nor another mother either [despite what happened at the beginning of the year].

      So I stepped back accordingly.

      Reply

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